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Thread: Chronic Pain Management Support Group

  1. #16
    Proud Canadian dealsniffer's Avatar
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    oh my goodness. do you have alot of seizures? That has to be scary. I know what you mean by waiting. I was diagnosed and then had to wait an estimated year and a half before I could even meet the specialist but was lucky and got in to see him in just over a year I believe and I had to wait a year for the first surgery even though I was at risk of disks in my spine slipping or something and it was frustrating. But at least I wasn't dealing with seizures. I actually had to have a CT scan because I have had a constant headache since October so that is about 4 months now maybe? My head is ok supposedly but my specialist who is actually a specialist for the spine and stuff is amazing and wanted to make sure I didn't have anything wrong in my head. Supposedly he as well as my dentist agree that the surgery that straightened my back indirectly caused my face muscles to be in pain which is possibly causing my headache. That is supposed to get fixed then with physio. I hear you on the headache thing-they can be awful. But back to you-it may be good that the tumor itself won't kill you but the pain that it causes can be possibly just as bad to deal with. It sounds like it is causing you alot of grief. Sorry I sort of went on about myself. You mentioned going back to Europe-have you been there for treatment before? Is there any treatment possible in the States? I have heard of people who can't afford to wait the wait times here in Canada and they go to the states for treatment. You probably looked into that already though maybe?
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  2. #17
    Canadian Genius Skippy's Avatar
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    One of the hardest things for me to deal with is my limitations.

    My wife works 1/2-3/4 of the time so I want to help out around the home.

    Problem is when I load the dishwasher like now,or do laundry,it sets everything off,and I need to pull out my meds.

  3. #18
    Smart Canuck YesI'mcheap's Avatar
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    I guess you can say my tumour is the ugly step sister of Brain tumours. Brain tumours already have a hard time getting funding for experimental treatment and researcher. Then add something that is not a life or death tumour ans there is even less money for it. Many doctors I have meet have said that Breast cancer gets for much attention that many other reseachers have a hard time getting funding. There is a couple of hospital in the stated that deal with my type of tumours but they cost alot. In the States they do removed them, here in Canada we tend to treat with the same meds that are used for treating Parkinson. As for the Europe thing I'm a dual citizen of Canada and Britan and my Hubby was born in Europe so we would be coved under the health care there. The only thing is that my main supports would not be there, well there not here in Saskatoon either.

    I'm like you Skippy my husband busts his butt and I want to help out so I got a part time job at walmart 12 hours a week, but guess what I have "taxed" my body and now I'm off work with nothing coming in and lots going out on meds and physio.

    As for wait times.... I have mixed feelings about them. I worked as a Health Care Aide for many years in Nursing Homes and seen alot of odd thing. Like the family of a 104 year old women that want CPR done on her if her heart stopped and all measures taken. They wanted her to have Chemo for Cancer she had for years and had done nothing about it. She went on the waiting list since she was not a prime canidate. My own Grandfather think he should have the first bite of the Health Care apple, but the doctors have said to us that he would be worst from the side effects of treatment they he is no from the condition. He thinks we are trying to get this money, but they doc said he could out live my parents now that he is in a nursing home. He can wait, IMO.

  4. #19
    Proud Canadian dealsniffer's Avatar
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    I understand what you mean Skippy about wanting to help out and other people doing most of the work. Because of what I am going through right now, I can't do alot of the simple tasks I would normally be able to do so I have to depend on my family to help me out with my stuff on top of their stuff. Sometimes I overdo it because I feel bad and then I am worse off than I was before and can do even less. So I guess we need to somehow learn our limits and do what we can but maybe not feel so bad about what others do for us. I think I should probably be appreciating what my family does instead of kicking myself so much that I can't help.
    YesI'mCheap-I guess that with you being a dual citizen that is in your favor at least maybe. Also your support system can still be with you even if they are not physically with you. I think your family and friends would rather you go where you have to in order to get better and be a ways away for a while than for you to stay here in Canada and be in so much pain.
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  5. #20
    Smart Canuck YesI'mcheap's Avatar
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    So today I when to physio again second time for my pinched never ( they think), I found out on Friday that the ER might have seen something wrong with my L5. So I let the physiotherapist know that I was wanting for the reading of more x-rays. She asked me to have all the 3 reports sent to her.

    So I call my medical clinic and ask to speak to my Doctors nurse. I'm told I can't I have to leave a message, fine not a problem. The front end girl is going on how she can help. So I tell her really I just want to the Doctors RN. I finally tell her I need the doctors nurse to fax all 3 X-ray reports to my physio clinic. She says can do that right away, fine whatever, she puts me on hold to find my file, my file is with my doctor, always is. She comes back to say my file is missing. I tell her check with the Doctors RN. Okay, she assures me, she will fax the physio clinic.

    So a 30 mins ago she calls back to say the doctor wants to see me in a week. Okay I already had appointment made and she says the doctor will talk to me then about the report. I tell her the reports need to be sent to the Physio and she like oh really why did you not tell me this. I say I did and I want all 3 sent. So the physio clinic calls like 15 mins ago to say that only 2 reports showed up. So now I'm hold as she tries to find the report I already talked to the doctor about. I'm ready to scream at someone, why can't I talk to my doctors Nurse? Why am I talking to someone more then likely with limited medical training. End of Rant.
    Last edited by YesI'mcheap; Mon, Feb 23rd, 2009 at 04:04 PM.

  6. #21
    Proud Canadian dealsniffer's Avatar
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    oh my goodness! that is frustrating! Medical people can be annoyingly frustrating. Hopefully your physiotherapist gets teh third report. I do agree it would have made alot more sense just to allow you to talk to your doctor's nurse. I hope things all get sorted out for you. Oh and are you in a place that you can scream without alarming people? If you are, scream and just let it out-I find that can be very helpful sometimes actually. Again, hopefully everything gets sorted out and you don't have to deal with any more incompetent people.
    Please take a moment to visit my blog! www.heatherv11.wordpress.com

  7. #22
    Canadian Genius Skippy's Avatar
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    I think everyone should buy a birdfeeder and watch their comings and goings.
    It has to be one of the best therapies I could recommend.

  8. #23
    Smart Canuck YesI'mcheap's Avatar
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    Skippy have anything else, I'm scared of birds? I normally clam, like but some days it like bang the head.

  9. #24
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    Quote Originally Posted by Skippy View Post
    I think everyone should buy a birdfeeder and watch their comings and goings.
    It has to be one of the best therapies I could recommend.
    lol-I made a bird feeder a couple weeks ago and got some mixed bird seed and they are great to watch! The only thing is that we only have chickadees visiting the feeder so far adn for some reason they picked out all the sunflower seed and now won't touch the rest! Silly birds! Oh well, I guess i need to get more sunflower seeds...until then, I will just have to wait with watching the birds again. They are wonderful to watch though and so pretty and they have pretty songs too. Who knew chickadees would be so picky? Maybe you (Skippy) know that? Anything else that I should know when it comes to feeding the birds? tips are great.
    YesI'mCheap-you don't like birds? hmm...I am not sure there is any other wildlife you would want to attract so maybe there is something indoors you could do or watch. Do you have a cat? You could get something that the cat plays with by him/her self and watch. I find watching my cat play is very amusing! Or maybe you could get a goldfish? Or maybe another kind of fish? I find sometimes anything that I can watch that takes my mind off myself helps. Even tv is helpful sometimes. That is all the ideas I have for now. What are your interests? Maybe Skippy and I could help you find something that falls with in your interests?
    Please take a moment to visit my blog! www.heatherv11.wordpress.com

  10. #25
    Canadian Genius Skippy's Avatar
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    Quote Originally Posted by dealsniffer View Post
    the birds? tips are great.

    YesI'mCheap-you don't like birds? hmm...I am not sure there is any other wildlife you would want to attract so maybe there is something indoors you could do or watch. Do you have a cat? You could get something that the cat plays with by him/her self and watch. I find watching my cat play is very amusing! Or maybe you could get a goldfish? Or maybe another kind of fish? I find sometimes anything that I can watch that takes my mind off myself helps. Even tv is helpful sometimes. That is all the ideas I have for now. What are your interests? Maybe Skippy and I could help you find something that falls with in your interests?
    The trick is to find anything that takes your mind off the pain even for awhile.

    That said,I'm in such agony I gotta go for now.

    Grace and Peace to All!


    NB dealsniffer Many Birwatching links are found on the "Bird sightings please post thread"
    Last edited by Skippy; Mon, Feb 23rd, 2009 at 07:42 PM.

  11. #26
    Smart Canuck YesI'mcheap's Avatar
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    I have two cats, well really they are puppycats. They have no real cat skills. I mean jumping on the bed is something they have yet to master in the last 7 years. . I really liked chipmunks but I have never ever remember they last time I saw, since we moved to Saskatoon. I read lots to take my mine off things. I also seem to visits alot of doctor offices. Not much of a life you can say.

  12. #27
    Canadian Genius Skippy's Avatar
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    Quote Originally Posted by YesI'mcheap View Post
    I have two cats, well really they are puppycats. They have no real cat skills. I mean jumping on the bed is something they have yet to master in the last 7 years. . I really liked chipmunks but I have never ever remember they last time I saw, since we moved to Saskatoon. I read lots to take my mine off things. I also seem to visits alot of doctor offices. Not much of a life you can say.
    Although not much consolation,and it doesn't seem that way.You and the rest of us are better off than many.

    One day at a time Lord,One day at a time.

  13. #28
    Proud Canadian dealsniffer's Avatar
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    Quote Originally Posted by Skippy View Post
    Although not much consolation,and it doesn't seem that way.You and the rest of us are better off than many.

    One day at a time Lord,One day at a time.
    well said Skippy!
    Please take a moment to visit my blog! www.heatherv11.wordpress.com

  14. #29
    Canadian Genius Crochetlady's Avatar
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    I was diagnosed with psoriatic arthritis at the age of 20. At that time they didn`t treat arthritis as aggressively as they do now, so I was on massive doses of aspirin for many years. By the time they gave me stronger meds, the joint damage was done. I found one way to cope with constant excrutiating pain was to close my eyes and visualize a tranquil scene. (my favourite is the mountains) Imagine you are there, feel the gentle breeze, smell the wildflowers. Whatever works for you. It helped me to relax, which in turn helps the pain. These days I don`t have to use that much as the joints in my fingers, toes and wrists are mostly fused so I don`t have as much pain anymore. Also it`s controlled much better with the new (very expensive) drugs that are available.
    As you said Skippy, there are always people that are worse off than we are and it helps to remind us to be thankful for the good days we have. I hope we all have a good one today.

  15. #30
    Canadian Genius Skippy's Avatar
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    Quote Originally Posted by Crochetlady View Post
    I was diagnosed with psoriatic arthritis at the age of 20. At that time they didn`t treat arthritis as aggressively as they do now, so I was on massive doses of aspirin for many years. By the time they gave me stronger meds, the joint damage was done. I found one way to cope with constant excrutiating pain was to close my eyes and visualize a tranquil scene. (my favourite is the mountains) Imagine you are there, feel the gentle breeze, smell the wildflowers. Whatever works for you. It helped me to relax, which in turn helps the pain. These days I don`t have to use that much as the joints in my fingers, toes and wrists are mostly fused so I don`t have as much pain anymore. Also it`s controlled much better with the new (very expensive) drugs that are available.
    As you said Skippy, there are always people that are worse off than we are and it helps to remind us to be thankful for the good days we have. I hope we all have a good one today.
    You've made my day,I thought your name was crotchety lady! LOL!

    My Dr.once diagnosed me as a Crotchety Old Man!-I kid you not!

    Better to laugh than cry!

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