Chronic Pain Management Support Group

[dealsniffer]

Skippy we all do that and it is difficult because we can't take back what we have said but apologies help even tho they don't take back what was said.
Well my back and legs go up and down in terms of pain and the last couple days has been a little more up except for last night when it was bad but that is because I was up too much. I think overall I might see a very slight improvement from using the wii for a week now. It is too soon to tell almost but I think I might be doing better on the exercises than I started out pain and tolerance wise. I am exausted tho I think from all the extra moving on the wii. It doesn't take much tho because I don't move around much because of the pain. I think that my appt is actually not going to be cancelled for tomorrow so I am finally getting in to see my specialist! almost 1.5 months later! grrr. still annoyed about that but I suppose I should not be. I am going to go lay down tho right now because I am exhausted! so I hope everyone is having a better day!

[Abby5]

I think we all do this. we are all in the same boat skippy. Pain is awful.(period)

[Andit]

Why do I lash out at those closest to me,when I am in agony?
Things I normally wouldn't say,I do and then I can't take them back.
Sometimes I wonder

Pain does weird things to all of us. I rarely say a cross word to anyone, but I was snapping at my family/friends a little while ago when I was overdoing it.

The ones who love you understand. They always do.

[Skippy]

For your words of support and encouragement.
Today is a bad day for pain,I want to puke from it.

[tidytaurus]

I hear you Skippy loud and clear, puking from the pain. I wish there was something to do to help you.

[dealsniffer]

Sorry Skippy to hear you are feeling so yucky. I really hope you feel better tomorrow.
I am back from my appt and just have to say a few things-I don't know if I am venting or not tho? After the appts getting cancelled and me having to wait so much I was hoping for the usual where he gives me the time I need to say stuff and whatever but today he gave me the feeling like he wanted to run out of there from his body language. You know how some people are when they want to go-they don't say it but you can tell they want you to hurry up thru their body language? Maybe I misinterpreted it but it made me uneasy. Also I don't know what to make of this but I was completely expecting him to say for me not to come back for another 6months but he changed it to 4months and I know it probably doesn't mean much but all of a sudden I felt like I was going to cry because the amount of time between appts decreased. He also didn't say that I was doing good and stuff like the last time but maybe he was in a hurry and didn't think to say anything about it. He said the xray looked ok and all I could think was just ok? I think he usually says the word good so I don't know. Yes I have a tendency to overanalyze stuff-usually when things seem rushed and I don't get to clarify things that don't make sense to me. I just keep wondering why the time between appts went down and he didn't say why. Sorry-then I am wondering if he thinks I am not progressing fast enough and maybe he was expecting me to be doing better? I don't usually over analyze my appts with him like this but this one seemed weird like I didn't get all the info or something. I did mention about my legs and he ordered an xray and I am almost positive there will be nothing-I was hoping he would have some idea of what it is tho. I also forgot to ask why my thighs and part of my back are still numb also-some days not having feeling there drives me crazy and the feeling supposedly should be back by now according to other people and something he said before. Also he forgot to give me another prescription for physio so I don't know if I should try make an appt with my family doctor who always asks me if I am working yet which is weird because the last time I came to see her was to do a check up for the second surgery and I could barely move and she asked me if I was working yet. what? lol yeah I can't stand up barely and I found someone to hire me. LOL what ever. I don't know if she would give me a physio prescription because she also thought a month after surgery it was absurd that I would still be taking painkillers. My specialist is great but today not so much-I am wondering if he was having a bad day maybe?

[jenner]

He might just be having a bad day, my specialist was rushed the last time I went to see him as well, they cram so many appointments in some days.

It sounds like everyone is having a tough week. Hopefully things get better soon.

It is nice to have this group to vent to, it helps having people that understand.

I hope everyone has a great Thanksgiving! I can't wait to spend some time with my family.

[Skippy]

Well Dealsniffer,I hear you loud and clear.
Specialists are another breed of Dr.,and their time seems even more stretched.
Like you I analyze everything,and in the end I'm frustrated too.
Presumably your family Dr. should receive a report from the specialist.
He/she may be the one to speak to,once they get the report.

Prayer not only offered for you,but for all here who suffer from pain.
May each one have an ample portion of grace and peace.

This day is not going well for me,too much pain eventhough I haven't done much.
It is chilly if not damp out and my body is responding terribly.Usually my pain doesn't cause me to puke,but am reaching that point again.

[dealsniffer]

thanks Skippy. My back is acting up from going to Edmonton-I was up too much and now in more pain for the next couple days. No wii for a bit. It is helping I think when I am able to go on it.
Skippy I am really sorry to hear about your pain and I really wish I could do something-anything other than support. I guess some virtual hugs? I hope it gets better than it is. I wish no one would have to go thru any more pain too. HUGS!!!

[Andit]

So sorry to hear everyone`s in pain. I`m starting to get the usual pain in my hands, courtesy of the cooler damp weather. It`s starting far too early this year, which is a pain in a region other than my hands.

Here`s hoping it`s a pain free (or lesser pain) day tomorrow for all.

[dealsniffer]

well we have to cut up the rest of the apples and making pie filling and just making a huge batch that we will separate and freeze. I am lasting about 10min before my back is in so much pain I have to lay down. the consequences of going out two days in a row I guess. my back feels like it is almost being ripped apart when I do certain movements when it gets like this and its painful. I know I should be taking it easy but the apples are starting to go bad so we have to do it today and I can't leave it all for my mom to do because that isn't fair to her either. I always mean to take it easy but there is always a ton of stuff that needs to be done so I keep pushing myself because "it'll just take a few minutes and I can push myself thru it" despite the pain until I just can't get up and I need to stop doing this! But I guess part of me thinks that if I can still get up then I am still good enough to keep doing stuff but it isn't good because I get to the point I just can't get up. I am not proud of this but I don't know how to fix it. I mean I just keep thinking how other people do way more than me so I "should" be doing this. I am worried this is causing me to take longer to get better? But I can't seem to stop.

[Andit]

I always mean to take it easy but there is always a ton of stuff that needs to be done so I keep pushing myself because "it'll just take a few minutes and I can push myself thru it" despite the pain until I just can't get up and I need to stop doing this!

I can`t give you any advice on this, because I`m the worst offender. Today, for example, I went out this morning to help my friend, a bit tiring, but since I didn`t do it yesterday, I thought it would be ok. Came home & the dog was bouncy, so I thought, well, I`ll just take her for a short walk. Later on, I felt guilty that I hadn`t spent enough time with her, so took her up to the rooftop patio (2 flights up, since elevator stops at penthouse level). Then running around with her, cause she doesn`t like to run around alone. Came home (down 8 flights of stairs, since I figured I hadn`t done it in a while & my legs needed it) & thought I`d take a nap, but the cat needed me. Finally got to take a little break (no nap, cause the animals kept waking me to check on my), then it was time to make dinner. I think the dishes might have to wait until tomorrow.

So...you are definitely not alone.

As for slowing your progress by overdoing it, it`s hard to say. My rule of thumb is that as long as I`m not doing anything the Drs say is a big no no, a little too much of authorized exercise is ok (for example, I`m not allowed anything high impact or I could crack some bones).

Hope you`re feeling better soon.

Felix has claws - tell him to peel the apples.

[dealsniffer]

haha Andit we have the same problem huh? I still went out to the greenhouse to pick the last of the tomatoes before they freeze tonight because it is supposed to be -10 and the stuff in the greenhouse won't survive that so out I went. I snuck out because my mom would have said she would do it because I shouldn't but she is already so busy. If I fall over I will stop! I feel ready to fall over from the exhaustion and the pain. Yet the pie filling isn't quite finished and Felix is still mad because of the last couple days being left alone and he is not in a very helpful mood plus my sister would not like cat hair in the filling so Felix helping is out I think. lol Sometimes I take more painkillers to mask the pain so I can do more and that may not be so bad or it may be-I don't know. I haven't recieved anything from my doctor now that I absolutely am not allowed to do so I am assuming that it is all ok as long as I can manage but I am afraid to ask because then he may actually tell me stuff I should not do. If I don't know I shouldn't do something then no one can scold me right? lol

[Skippy]

well we have to cut up the rest of the apples and making pie filling and just making a huge batch that we will separate and freeze. I am lasting about 10min before my back is in so much pain I have to lay down. the consequences of going out two days in a row I guess. my back feels like it is almost being ripped apart when I do certain movements when it gets like this and its painful. I know I should be taking it easy but the apples are starting to go bad so we have to do it today and I can't leave it all for my mom to do because that isn't fair to her either. I always mean to take it easy but there is always a ton of stuff that needs to be done so I keep pushing myself because "it'll just take a few minutes and I can push myself thru it" despite the pain until I just can't get up and I need to stop doing this! But I guess part of me thinks that if I can still get up then I am still good enough to keep doing stuff but it isn't good because I get to the point I just can't get up. I am not proud of this but I don't know how to fix it. I mean I just keep thinking how other people do way more than me so I "should" be doing this. I am worried this is causing me to take longer to get better? But I can't seem to stop.

Overdoing it will indeed make matters worse,been there myself.
Bottom line is I can only do so much,so the place looks like a tornado hit it.But a good friend said he comes to see me and not my house.

[dealsniffer]

LOL Skippy yes I have a friend like that too! but how do you not overdo it? I can't seem to stop myself from doing stuff that "needs to be done" no matter how much pain I am in. Sometimes the pain makes me cry but I keep going because I can still stand up so I keep going. It is stupid I know but I can't seem to change because in the back of my mind I also wonder if my pushing myself will help me get better faster? Because no pain no gain right?