Chronic Pain Management Support Group

[Skippy]

does not agree with Skippy. Unfortunately it is one of the worst times of the year. This year is worse with August being such a trying,draining month
My meds. have yet again been adjusted and I can choose between agony and sleep. The time I am awake is the time I need to "perform" so SC falls
to the wayside.
My family is supportive, but my DW is carrying the load.
Please pray for healing/restoration or at least relief.
Thank you my friiends.

[Natalka]

Skippy, go with sleep as much as you can then, so you can rejuvenate with the rest.
Don't worry about having your wife shoulder the load - you are there for her when she needs it any other time.
Hoping you get better, with more relief.

I pray for you daily, Skippy!

[gameprogirl]

Thank you for the spoon article.

I have not been well, getting worse actually. People look at me and think "this girl looks ok, why cant she do normal stuff" They never understand.
For my whole life, since I started getting ill, no one believed me, or if they did, they didnt understand it. They always try to blame something, maybe I didnt get enough sleep or ate a bad diet to make this happen. I try to explain to people, sometimes bad things happen, I did not abuse my body to get this way.

When I tell people I have liver disease, they ask me if I am an alcoholic. I never drank in my life except a beer on Christmas once a year. My grandmother died of liver disease at 50, a month after I was born, perhaps it was a sign of things to come.

Its hard to explain the turmoil a sick person feels. I have to plan every moment of my day, even trips across the street can be difficult. My family doesnt understand why I'm not getting out more, but how can I when I have no energy or its a bad day.

I have so many malfunctions in my body, one day my liver is ok but my crohns will act up, or my IBS, or my IBD or something else. I never feel good, I never feel like me.

Trying to function as a normal person takes more effort than people realize. The pain is sometimes unbearable.

The thing I hate about being sick, is the sympathy, or pity I get. That feels worse than being sick.

[Andit]

So sorry to hear things are going poorly for you, Skippy & GPG. I also have the "you look normal" thing going on - my worst curse to the nastiest person I come across is that they have to spend a day living my life minus the good parts (wonderful friends & great family).

The spoon theory is interesting. Thanks for posting it, momof3heathens.


I use the cell phone theory. In the morning, my battery may or may not be charged, depending on whether I remembered to plug in the phone the night before. & sometimes it takes more than a day to recharge. If it's charged, it has a limited capacity, since it's old & creaky & very much out of date. But since the cell phone is old, new batteries won't work, so I have to live with the one I've got.

I can make only so many calls in a day, far less than in my younger days, but at least I can still connect. Of course, it being an ancient phone, I don't have all the modern gadgets & gizmos that others have - in other words, I have no app that lets me climb mountains & run marathons. Heck, some days I'm lucky if I can get a signal.

So, although my battery is limited, it still allows me to do a few things. The problem is that no matter how much I try to plan ahead, I always seem to get a wrong number that eats away at the battery. Darn those pain in the keester telemarketers.

Still, I'm happy to even have a phone.

[Skippy]

Worst Timmies run ever, could barely move on the way home
Thank goodness for meds.and the heating pad.

[Skippy]

Could very well be indeed.
Please pray for my body,mind and spirit.
Thank you my friends.

[Valiant]

http://www.bing.com/images/search?q=...=IGRE#x0y24747

I have found some relief in doing some of these exercises. They are meant for stretching out tightened tendons and painful, cramped muscles and they really help.

[momof3heathens]

Love the cell phone analogy.

[gameprogirl]

Could very well be indeed.
Please pray for my body,mind and spirit.
Thank you my friends.

Hoping you get some relief Skippy!

[Kyeste]

Haven't read all the posts but has anyone seen this:

http://www.butyoudontlooksick.com/ar...e-miserandino/

Thanks for the link! That explained it in a way I could never hope to.

I guess I'm lucky, I've never really had to explain my pain to anyone because everyone understands. Of the 6 people in my immediate family, 5 of us have chronic pain (2 of us can't work due to it). And throughout my aunts, uncles, and cousins, some have muscular dystrophy, some have bad spines... same with friends, they all have family members who suffer chronic pain.

The only person I've ever had to actually explain myself to is my ex. He learned after a lecture from his aunt (who explained better than I did my own diseases! ). Wish I'd had this when I was trying to explain it! Once he realized he became a total sweetheart and never once pushed me. If we get back together (maybe, we separated due to stressful personal lives) I'm sure he'd be even better about it, since he's currently suffering some pain of his own.

[Skippy]

Relief is elusive,nowhere to be found

[Skippy]

Here's to a pain free day for all

[Natalka]

Skippy, if you already didn't get one, the forms are online

http://www.cra-arc.gc.ca/E/pbg/tf/50...000-s1-10e.pdf

[Skippy]

Skippy, if you already didn't get one, the forms are online

http://www.cra-arc.gc.ca/E/pbg/tf/50...000-s1-10e.pdf

Thank you my friend.
I phoned this morning to request the specific form and it turns out that there is a line on the general form. However I missed it because the lines are not all in numerical order!. So I got myself all worked up for nothing.
With the pain I just can't think straight more often than not.

[Valiant]

A very painful and sleepless night with lots of shoulder, arm, wrist and hand/finger pain. Really agonizing.
However, I'm up and at it today; plumber coming for repair this PM.
Take care, everybody! We may not be pain-free, but we are all in this together, and that helps.