Chronic Pain Management Support Group

[MrsSunshine]

and days like today.. I HATE to join you.. but I will. Im here.. just hoping and praying really hard tomorrow is better. however something tells me .. this is just the beginning .. again..
(hugs) for everyone.

[Skippy]

and days like today.. I HATE to join you.. but I will. Im here.. just hoping and praying really hard tomorrow is better. however something tells me .. this is just the beginning .. again..
(hugs) for everyone.

Prayer offered on your behalf.

[Skippy]

The sicker I've been, the more I have alienated those closest to me.
My heart is broken.
Tomorrow I will see my Dr. to follow up on the latest x-rays.
I will demand different meds.as I can no longer deal with this.

[MrsSunshine]

thanks for your prayers Skippy.. and to you I hope you find some relief.

[jenner]

Praying for you Skippy, I hope your doctor can help you tomorrow.

Hugs and best wishes for pain relief for all on this thread.

[Kyeste]

If I wasn't a reticent person, I'd probably speak up to the woman. And knowing me I'd probably try to be her friend. I hate people hating me. I got enough of that as a kid (no kids want to be friends with someone who is always in hospitals).

But I agree about the "older you get the sicker you get", as I have certainly acquired many various degenerative problems and things since I was 5 years old. But I don't agree that just because you get sicker when you get older, that that gives her the right to judge someone else based on their pain (she doesn't just judge me for being young, she judges others, too).

Just because one person only has one problem and another has fifty, doesn't make their pain any less real. And besides, people handle pain differently. Just because someone has the same disease as you, but not as badly as you, doesn't mean that you can tell them to stop whining and suck it up.

When I dislocate my joints and get them shoved back into place, I don't cry. But other patients do. Doesn't mean I feel less pain than they do. But that doesn't mean I should tell people who cry to stop being such a baby. (I wouldn't, because getting joints shoved back into place hurts like a binder-snap! Unless it's bad enough for anaesthesia and surgery )

I don't know, I guess since I've lived with it my entire life... and don't remember ever not being in pain... it's just something I see as being an, "Oh well, you're sick. Deal with the bad periods. Whine if you need to. But you damn well better enjoy the good ones! Don't let pain ruin your life."

Plus growing up with a father who does nothing but kvetch about being in pain and just wants sympathy all the time.. well, his life is just plain sad. And watching others go down the same road is just... sad. I don't like seeing people do that. There are so many reasons to not give in to the pain and give up on life...

I wish I could tell her that yes, she's in pain. Yes, it hurts. It's chronic, it's not going away no matter how much sympathy you get. Please, please, please take a minute to realize it could be SO much worse. And there are many ways to limit the pain. Sympathy can make you feel better, but it could never make you pain free.

I don't know whether she's worse than I am, or better, of that I don't care. I'm not contesting who has more diseases, who is more sick, who feels more pain. I just want her to take a deep breath and realize she has a family, she has kids, she has a lot of reasons to smile and not see life as being awful.

[hollyquaiscer]

Skippy, I h can have been praying for you. I would hope that today, at least you can feel a least a sligh bit better than yesterday. You have to tell your Dr. to keep trying different pain meds until you find one that will at some point, give you even 10% relief from what you were feeling the day before. I have tried everything under the sun, refusing to take narcotics. Well, nothing worked. About 7 years ago, I finally gave in and tried Ocycontin. I threw up for at least a month straight. I didn't like it at all and I felt even sicker. So my Dr. reduced the strength of it, and added Dialudid. I now take the 8mg Dialudid 8 to 10 times a day, depending on the day, the weather and many other factors, as well as a 20mg Oxycontin. This mix of pain meds allows be to get out of bed before 11, shower myself and move around. Prior to these meds, my days were spent (most of them) either in bed or on the couch and in and out of the hospital. Now, I am thankful for everyday I have that I can walk around. As winter approaches, things get progressively worse. We are usually gone from Canada by the end of October, but last year and this year we will not be leaving till January. My stepmother (this may be her last Christmas) is with us for Christmas, and my youngest dd will graduate from her treatment program on Jan 3rd, We need to make sure our family is safe and happy before we leave. I understand how our minds and bodies make us mean and bitter towards our family at times, and I really understand the fact that we never mean what we sometimes say and that it is the pain speaking. I am so fortunate to have a loving and understanding dh and dd's. I am truly blessed. I wish for you, peace, to be pain free, even if only for one day, and that your Dr. is able to change your pain meds to allow you to function. I will pray for you constantly.

[Lynn49]

A prayer for you, Skippy, that your doctor provides you with relief from the pain..it's time and you've suffered for so long...Gentle hugs, my Friend....

[Lynn49]

Some wise words here from Kyeste, Holly, about how pain affects us and I'm fortunate to only have arthritis, bad joints that will require replacing soon enough, a bad back and fibromyalgia, because my best friend is dying from ALS (Lou Gehrig's Disease). We've been friends for almost 20 years and I can't imagine a day without talking to her, or emailing back and forth...we've travelled together, and our hubby's are the ones who introduced us, since they golfed together. Since then we've all been like family.
I hate that she's losing her speech...that we can't knit together anymore, or make jewelry together anymore and that she's having difficulty now walking..we used to shop for hours!
Sorry to vent, but all this talk of pain...mine, yours...sometimes I feel ashamed to complain, knowing this may be her last Christmas with her family...I know we're in a bad place most of much of the time, but geez...we'll live to see another Christmas, Spring, Summer...sorry...I'm just sad right now.....

[gameprogirl]

Some wise words here from Kyeste, Holly, about how pain affects us and I'm fortunate to only have arthritis, bad joints that will require replacing soon enough, a bad back and fibromyalgia, because my best friend is dying from ALS (Lou Gehrig's Disease). We've been friends for almost 20 years and I can't imagine a day without talking to her, or emailing back and forth...we've travelled together, and our hubby's are the ones who introduced us, since they golfed together. Since then we've all been like family.
I hate that she's losing her speech...that we can't knit together anymore, or make jewelry together anymore and that she's having difficulty now walking..we used to shop for hours!
Sorry to vent, but all this talk of pain...mine, yours...sometimes I feel ashamed to complain, knowing this may be her last Christmas with her family...I know we're in a bad place most of much of the time, but geez...we'll live to see another Christmas, Spring, Summer...sorry...I'm just sad right now.....

I'm so sorry Lynn that your going through this now Dont apologize for being sad, there is nothing to say sorry for. I feel really bad for you and your friend.

[Skippy]

Skippy, I h can have been praying for you. I would hope that today, at least you can feel a least a sligh bit better than yesterday. You have to tell your Dr. to keep trying different pain meds until you find one that will at some point, give you even 10% relief from what you were feeling the day before. I have tried everything under the sun, refusing to take narcotics. Well, nothing worked. About 7 years ago, I finally gave in and tried Ocycontin. I threw up for at least a month straight. I didn't like it at all and I felt even sicker. So my Dr. reduced the strength of it, and added Dialudid. I now take the 8mg Dialudid 8 to 10 times a day, depending on the day, the weather and many other factors, as well as a 20mg Oxycontin. This mix of pain meds allows be to get out of bed before 11, shower myself and move around. Prior to these meds, my days were spent (most of them) either in bed or on the couch and in and out of the hospital. Now, I am thankful for everyday I have that I can walk around. As winter approaches, things get progressively worse. We are usually gone from Canada by the end of October, but last year and this year we will not be leaving till January. My stepmother (this may be her last Christmas) is with us for Christmas, and my youngest dd will graduate from her treatment program on Jan 3rd, We need to make sure our family is safe and happy before we leave. I understand how our minds and bodies make us mean and bitter towards our family at times, and I really understand the fact that we never mean what we sometimes say and that it is the pain speaking. I am so fortunate to have a loving and understanding dh and dd's. I am truly blessed. I wish for you, peace, to be pain free, even if only for one day, and that your Dr. is able to change your pain meds to allow you to function. I will pray for you constantly.

I thank you for your prayer which is very much appreciated.
I am sorry that you have such severe pain, and admire you for putting your family ahead of yourself.
Fortunately my meds.were increased and I was able to function better today.
May you and yours know much grace and peace.

[Skippy]

Some wise words here from Kyeste, Holly, about how pain affects us and I'm fortunate to only have arthritis, bad joints that will require replacing soon enough, a bad back and fibromyalgia, because my best friend is dying from ALS (Lou Gehrig's Disease). We've been friends for almost 20 years and I can't imagine a day without talking to her, or emailing back and forth...we've travelled together, and our hubby's are the ones who introduced us, since they golfed together. Since then we've all been like family.
I hate that she's losing her speech...that we can't knit together anymore, or make jewelry together anymore and that she's having difficulty now walking..we used to shop for hours!
Sorry to vent, but all this talk of pain...mine, yours...sometimes I feel ashamed to complain, knowing this may be her last Christmas with her family...I know we're in a bad place most of much of the time, but geez...we'll live to see another Christmas, Spring, Summer...sorry...I'm just sad right now.....

No apology necessary, feel free to vent anytime.
I'm so sorry about your friend, she is quite fortunate to have someone like you around. Although she may not be able to communicate verbally. I hope that in other ways you may know how much you mean to her.

[Skippy]

The sicker I've been, the more I have alienated those closest to me.
My heart is broken.
Tomorrow I will see my Dr. to follow up on the latest x-rays.
I will demand different meds.as I can no longer deal with this.

Well as expected the x-rays show my condition is worsening, however I am still better than many.
My medication has been increased and I go back sooner for follow up.
Thanks to all for your prayers.

[Andit]

So sorry to hear everyone`s having a rough time of it. Sending prayers to everyone for a pain-free (or at least reduced) weekend.

I`m headed into the ouch season (arthritis in my hands kicks in when the temps start to drop & makes things a bit more complicated). Good thing Lily dog can do the housework & Quincy cat can open containers (too bad he insists on focusing on the treat jar ).

[hollyquaiscer]

Some wise words here from Kyeste, Holly, about how pain affects us and I'm fortunate to only have arthritis, bad joints that will require replacing soon enough, a bad back and fibromyalgia, because my best friend is dying from ALS (Lou Gehrig's Disease). We've been friends for almost 20 years and I can't imagine a day without talking to her, or emailing back and forth...we've travelled together, and our hubby's are the ones who introduced us, since they golfed together. Since then we've all been like family.
I hate that she's losing her speech...that we can't knit together anymore, or make jewelry together anymore and that she's having difficulty now walking..we used to shop for hours!
Sorry to vent, but all this talk of pain...mine, yours...sometimes I feel ashamed to complain, knowing this may be her last Christmas with her family...I know we're in a bad place most of much of the time, but geez...we'll live to see another Christmas, Spring, Summer...sorry...I'm just sad right now.....

I feel so bad for you I know what it is like to loose a very close friend. It's like loosing your right hand. It will be so very hard, but you must remember to make the very best of each and every minute the two of you have left together. Remember the great times, and help her through the bad times, she will need you. We all feel bad when we complain. But it is not, and no-one no matter what the type of pain we are dealing with no one can be a happy camper all the time (except me ) Keep positive and enjoy every precious moment you have with her. I am going to say a prayer for you and your friend both tonight.