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Wed, Feb 19th, 2014, 07:30 PM #46no more door to door! :)
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Thank you for your post and taking us through what you have experienced Loocie. Many of us are in awe of how you have handled your journey with this disease since you were first diagnosed. Unfair does not even begin to describe the reaction I had to reading it all. Awareness and knowing what the symptoms are can most definitely help others, thanks for posting the details.

Charles R.I.P. passed October 29th 2024 52 years old
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Wed, Feb 19th, 2014, 08:39 PM #47Mastermind
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Group love for you, Loocie!

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Wed, Feb 19th, 2014, 11:04 PM #48Canadian Guru
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Thinking of you every step of the way.... xoxo
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Thu, Feb 20th, 2014, 12:01 AM #49Canadian Guru
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Dear Loocie...
Your Words may not bring a Cure, but they bring Awareness.
Awareness can be Followed by Knowledge.
Knowledge, in the Right Hands, can bring Wisdom.
I may not be "Wise", but I can Seek Knowledge.
THANK You for Taking my Hand and Leading me to the Unknown!!!!
Together, we shall All March Forward with our Hearts Held High.

I live in a Cartoon World as I am surrounded by Characters.
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Thu, Feb 20th, 2014, 12:32 AM #50
This reminded me of you Loocie. Thanks for sharing your story.
"The most beautiful people we have known are those who have known defeat, known suffering, known struggle, known loss, and have found their way out of the depths. These persons have an appreciation, a sensitivity, and an understanding of life that fills them with compassion, gentleness, and a deep loving concern. Beautiful people do not just happen." -Elizabeth Kubler Ross
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Thu, Feb 20th, 2014, 01:05 AM #51
Last edited by the H team; Thu, Feb 20th, 2014 at 01:06 AM.
NASCAR SEASON is complete for 2021.
Kyle Larson wins his 1st Nascar Championship.

nascar:a way of life
everything else is just a game
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Thu, Feb 20th, 2014, 01:07 AM #52
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Thu, Feb 20th, 2014, 01:10 AM #53
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Thu, Feb 20th, 2014, 01:23 AM #54
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Thu, Feb 20th, 2014, 07:55 AM #55

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Thu, Feb 20th, 2014, 11:42 AM #56Mastermind
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Thu, Feb 20th, 2014, 07:44 PM #57Keep Smiling :)
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My thoughts and prayers are always with you my dear friend!! Big hugs sent your way
Keep smiling and NEVER EVER give up because YOU WILL beat this!!!
xo

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Thu, Feb 20th, 2014, 08:24 PM #58Canadian Genius
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Thu, Feb 20th, 2014, 11:26 PM #59
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Fri, Feb 21st, 2014, 11:29 AM #60Still keeping the faith
- Join Date
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Today is much better than yesterday. I'm still sorting out getting into this groove. I went out with one of my nuttiest friends to pick up a few grocery items. We both got a case of the giggles and actually made other people laugh along with us. Laughter eases tension....who knew that a simple trip to the grocery store could be so much fun?
I will have more to tell you soon.
* just a footnote regarding Neurofibromatosis. It is very rare that we see malignancies less then 7%. I wonder how come it had to darken my doorstep? It is a very diverse disorder that effects everyone so differently. Talking about this is a huge step out of my comfort zone, but if more of us don't speak out, we will never be heard.
Thanks for tagging along.
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