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  1. avoncallingu
    avoncallingu liked post by SillyLoocie On thread : Loocie's Sarcoma Journey Thoughts, Feelings & Snippets.
    Preparing for tomorrow. It is good to be prepared & I guess that's why the Girl Guides & Boy Scouts have those two simple words as their motto. We tend to pack a lunch for my hospital days. I'm down...
    Liked On: Thu, Jun 11th, 2015, 11:33 PM
  2. avoncallingu
    avoncallingu liked post by SillyLoocie On thread : Loocie's Sarcoma Journey Thoughts, Feelings & Snippets.
    Have I mentioned that I am going to try my very best & even a little bit better? Do you know I believe absolutely no one should be included as cancer's debtor? Can I also give a thumbs up to the...
    Liked On: Thu, Jun 11th, 2015, 11:31 PM
  3. avoncallingu
    avoncallingu liked post by SillyLoocie On thread : Loocie's Sarcoma Journey Thoughts, Feelings & Snippets.
    282911
    Liked On: Thu, Jun 11th, 2015, 11:30 PM
  4. avoncallingu
    avoncallingu liked post by SillyLoocie On thread : Loocie's Sarcoma Journey Thoughts, Feelings & Snippets.
    Yesterday was World Neurofibromatosis Day. The CN Tower was lit up in green & blue (our colours) to promote awareness. We sure have a very long way to go. I hope that one day, people will just know...
    Liked On: Thu, Jun 11th, 2015, 11:29 PM
  5. avoncallingu
    avoncallingu liked post by SillyLoocie On thread : Loocie's Sarcoma Journey Thoughts, Feelings & Snippets.
    Life does not always operate on the fair side of town. We often find ourselves facing obstacles that challenge & worry us. Many of the people I know with NF have such major issues, yet they inspire...
    Liked On: Thu, Jun 11th, 2015, 11:28 PM
  6. avoncallingu
    avoncallingu liked post by SillyLoocie On thread : Loocie's Sarcoma Journey Thoughts, Feelings & Snippets.
    My good friend Reggie has very significant symptoms with his NF. 282383
    Liked On: Thu, Jun 11th, 2015, 11:28 PM
  7. avoncallingu
    avoncallingu liked post by SillyLoocie On thread : Loocie's Sarcoma Journey Thoughts, Feelings & Snippets.
    One more thing. 282340
    Liked On: Thu, Jun 11th, 2015, 11:27 PM
  8. avoncallingu
    avoncallingu liked post by SillyLoocie On thread : Loocie's Sarcoma Journey Thoughts, Feelings & Snippets.
    For me, up until the age of 40, I was unaware that this disorder existed, let alone that I had it. It sure took a hold of my life. Since May is the month where awareness can hopefully be raised, I...
    Liked On: Thu, Jun 11th, 2015, 11:27 PM
  9. avoncallingu
    avoncallingu liked post by SillyLoocie On thread : Loocie's Sarcoma Journey Thoughts, Feelings & Snippets.
    Mechman you always say the right thing. :) :) :) :) p.s. I love Huey Lewis.
    Liked On: Thu, Jun 11th, 2015, 11:25 PM
  10. avoncallingu
    avoncallingu liked post by SillyLoocie On thread : Loocie's Sarcoma Journey Thoughts, Feelings & Snippets.
    It went A-OK at the hospital yesterday. Aside from some very long waits, I was pleased. This picture is from the 4th floor just down the hall from the Clinical Trials Pharmacy. 282237
    Liked On: Thu, Jun 11th, 2015, 11:24 PM
  11. avoncallingu
    avoncallingu liked post by SillyLoocie On thread : Loocie's Sarcoma Journey Thoughts, Feelings & Snippets.
    I'm back at it tomorrow. It must be Tuesday huh? Hospital visit & the usual routine. This time I will remember my list of questions. I am feeling good tonight & with a good night of restful sleep,...
    Liked On: Thu, Jun 11th, 2015, 11:23 PM
  12. avoncallingu
    avoncallingu liked post by SillyLoocie On thread : Loocie's Sarcoma Journey Thoughts, Feelings & Snippets.
    Happy Mother's Day 281820
    Liked On: Thu, Jun 11th, 2015, 11:23 PM
  13. avoncallingu
    avoncallingu liked post by SillyLoocie On thread : Loocie's Sarcoma Journey Thoughts, Feelings & Snippets.
    Mother's Day Wishes. Thinking about my own charming Mom. I sure miss her. 281764
    Liked On: Thu, Jun 11th, 2015, 11:22 PM
  14. avoncallingu
    avoncallingu liked post by SillyLoocie On thread : Loocie's Sarcoma Journey Thoughts, Feelings & Snippets.
    Loocie is having one of those days that come your way that are crumby & crappy. I hope tomorrow is better. I am getting so frustrated today.
    Liked On: Thu, Jun 11th, 2015, 11:21 PM
  15. avoncallingu
    avoncallingu liked post by SillyLoocie On thread : Loocie's Sarcoma Journey Thoughts, Feelings & Snippets.
    NF1 is a progressive disease; that is, it tends to get worse with age. There is no cure for NF1. It's important for people with NF1 to regularly see their doctor, so that any complications of the...
    Liked On: Thu, Jun 11th, 2015, 11:20 PM
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